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  1. R

    Tube feeding, mucus

    I have read that pineapple juice is supposed to thin mucus. Do you have to drink it or can you put in tube?
  2. R

    Charlotte to Atlanta

    My husband bought a business in Atlanta and we're moving there. Has anyone had any experience with the Atlanta ALS Clinic or know of any organizations that can provide support? This will be a very hard move for me and I know no one there!
  3. R

    PLS to ALS

    Last clinic I was told I now show signs of Lower Motor Neuron involvement. I asked if this now means I have ALS? The response was" the only way to tell is to have an EMG and it wouldn't change treatment anyway". So my question is...should I get a diagnosis in writing or should I just let it be...
  4. R

    Feeding tube woes

    My tummy is raw from the bumper on my feeding tube...any suggestions? I already use a gauze bandage but that doesn't seem to help. I also have a lot of skin granulation it is very painful! Help!
  5. R

    Women's Pull up Pants

    I'm having trouble pullin up/down my regular Capri/yoga pants. Any suggestions or for new pants?:oops::no, I'm not doing Yoga...I wish!
  6. R

    Natural Formulas

    Has anyone had any luck getting Medicare to pay for a natural or organic formulary for the Peg tube. Has anyone ever used one? Ensure seems to be all chemicals and SUGAR! How can that be good for you?
  7. R

    Shoulder and neck pain

    Does anyone else have shoulder and neck pain? I have been told by ortho Dr. That's it Frozen Shoulder and Arthritis. It hurts so badly I can hardly use it and it's now very weak! Is this from PLS or a seperate issue? Is making it hard to use my arms!
  8. R

    Baclofen

    Does anyone know if oral Baclofen can be taken as needed or do you have to use it on a regular basis? It makes:evil: me go to lala land and I don't want to be "out of it" all the time.
  9. R

    Adjustable Bed

    Does anyone know anything about adjustable bed brands? I've looked online and very confusing! It's gotten so I can hardly sit up by myself to get out of bed. I'm hoping this bed will help or am I just fooling myself?
  10. R

    PLS to ALS

    Has anyone on here moved from PLS to ALS? Does anyone know the symptoms? Does anyone know how the Dr. Tells?
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