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  1. G

    Experiences with Bulbar ALS w/No PEG

    Hi, I'm hoping for some input from caregivers of people who have had bulbar ALS but chose not to have a feeding tube. Our situation is a bit different in that my 72-year-old mother's journey began with frontotemporal dementia about 2 years ago, and then bulbar ALS symptoms arrived about a year...
    • googie.cat
    • Thread
    • ability als als symptoms bulbar bulbar als caregivers decline dementia family feeding feeding tube ftd information muscles paralyzed peg pneumonia problems respiratory swallowing symptoms weakness
    • Replies: 17
    • Forum: General discussion about ALS/MND
  2. G

    Odd Question on Mouth/Lung Issue?

    Hi, all-- As I posted here a few weeks ago, my mother, age 72, has language-variant frontotemporal dementia and also suspected ALS (getting evaluated in early February). She has increasing trouble swallowing, and before her speech all-but-completely disappeared she was slurring and her speech...
  3. G

    Looking for Advice on Handling Bulbar ALS Symptoms

    Hi all-- Been lurking for a while, but need to post. My 72-year-old mother was diagnosed with the language variant (PPA) of FTD in February of 2012. By the end of that month, she was already starting to exhibit some issues with swallowing and breathing, but it wasn't until just last month...
    • googie.cat
    • Thread
    • advice als als symptoms back ball breathing bulbar bulbar als choking clinic dad diagnosed eating ftd night speech support swallowing swallowing issues symptom symptoms work
    • Replies: 7
    • Forum: ALS and frontotemporal dementia
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