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Hello everyone, I read often but post rarely. Thank you all for all of the great info on here. My PAL is in a terrible situation. PAL's onset was at 22. He is now 27 and has a slow progression. Family is very wealthy but does not help with caretaking or costs. Friends are doing it all...

I am the caregiver of a 26 yo with ALS (diagnosed 2009). He is a slow progresser. He is feeling a very strong achey feeling in his center/left chest. The ache comes in waves. When he inhales deeply, the pain comes at the end of his exhale. Sound familiar to anyone? Is this an ALS thing? We...