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  1. S

    Non verbal pet peeve

    This is one thing about my mom's ALS that really irks me. Not the fact that she is non-verbal but the fact that many health care professionals don't document it. My first irritating encounter was when mom went to the ER last month and then got admitted for 6 days due to pneumonia. Initially in...
  2. S

    medication clogging feeding tube?

    My mom has a feeding tube (not sure if it's called a g tube or peg tube). She had been crushing her medications and mixing them with apple sauce to take orally. She is not comfortable taking anything by mouth any longer so all medications have to go thru the tube. The blood pressure one...
  3. S

    Any advice about text to speech telephone?

    My mom has completely lost her voice to ALS. She has an IPAD but has not used it for alternative communication yet. She's trying to make the most of her denial stage but its getting harder for her to do. One concern we have is if she needed to make an emergency phone call. Although it sure would...
  4. S

    My mom was diagnosed

    I thought I'd introduce myself since I'm new here. My parents moved to Orlando a few years ago to be close to me (now we're all glad they did). Mom thought she had MS a year ago but turned out to be ALS. Her speech was slurred (people thought maybe she was drinking, which I read is common to...
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