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Months ago, my pcp (primary care physician) recommended that I tell old friends that I have ALS. I have put this off because I don’t know how to handle it. I find it awkward. This is a monster disease, and I’m progressing fairly quickly. Would it be better to let them remember me, if they do...

Any advice on getting into the front passenger seat of a small SUV? I have left sided weakness. Until recently, I didn’t have a problem getting into the car. I simply backed in and sat down, sort of the reverse of getting out. I use a walker, but now my left arm has gotten so weak that I can’t...

I have weakness on one side, and I have developed pain in that shoulder joint. It hurts to raise my arm, or if someone pulls me by the arms from sitting to standing. Range of motion is getting very restricted. It hurts at night unless I support the arm. The other shoulder joint has a hint of the...

My eyes burn. I don't think this is related to ALS, but I thought I'd ask if other PALS have this problem. I first noticed this about mid September. At first my eyes burned when I rubbed them with my hands. I figured it might be a new allergy to soap. But I've tried other brands. Now I've...

I have trouble standing up from a chair if my knees are higher than my hip sockets. I can no longer sit on most/all couches, for example, because I can't get up. Does anyone know of or have tried a seat cushion that would raise up a low seat? I googled wheelchair cushions, and these may work...

For me, it's been a little over two weeks since diagnosis and all the tests, and I'm not sleeping well. Don't know if this is a common problem and whether it will ease as time goes on. Certainly, I tire easily. I have left sided leg and arm weakness and no breathing issues... yet. I don't know...

I went to the hospital 2 weeks ago for prequel to surgical fusion of herniated cervical discs and was thankful my left-sided weakness wasn't an MND But the neurosurgeon walked me down the hall to a neurologist. I had my first fasciculations during the neuo exam. EMG and nerve conduction tests...