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I had great time at the Easter family gathering. I laughed a lot. My house was packed because of rain. I also sent an email to friends about my ALS. Some want to come see me. Thank you all. Bob

I used cushions for added elevation, then I only sat in chairs with arms, so I could push with my arms. Then I got a "seat assist." I have grab bars in the shower that are held by screws. I now use a shower chair that rolls into the shower, so it's very safe. I could be strapped in if that time...

That is an excellent point. I have a POLST on my frig and have discussed it with my fire and police dept. so they are on the same page. However, I don't know if the details of how this is done might vary by city and state.

Sounds like your dad is of sound mind, so at the end of the day, it should be his decision. And it's good that he is planning. I have a DNR and advance directive including no trach. I was against a PEG at first but, however, I was persuaded to consider a PEG tube if needed early in my...

In my case, one-sided weakness and fasciculations prompted the first EMG, but the EMG detected mild changes in my "good" arm months before I noticed physical weakness and loss of dexterity in that arm.

It looks like nearly everyone is coming. That's just amazing and cheers me up!

Amber, You might want to do an internet search on Speakbook which seems very easy to use without using hands or speaking. Bob

Anne, I'm sorry everything is coming at you so fast. A breathing machine such as bipap will help you sleep better and have more energy during the day. I've just started to lose some lung capacity, so my doctor says I don't need a bipap yet. But I think of it as a comfort measure. Bob

I know you're scared and upset. That's an understandable reaction. My wife and I went through a similar period of shock after the first diagnosis. You're getting a 2nd opinion, so try to take it one day at a time. Bob

Thank you all for the wonderful responses and advice. You have helped through what had seemed a tough decision. But now I have a better idea what do. My wife and I were also worrying over whether to host our traditional gathering of extended family from all over the country for Easter this...