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    First Question for ALS Caregivers?

    Thank you for sharing your experiences KissJ. So far we haven't had any issues. We are going into the women's restroom together and it is working out. Some really nice people have offered to guard the door. You are right, the condom cath is uncomfortable and the hair pulling is definitely a...
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    First Question for ALS Caregivers?

    Wow, you all had some good advice. I went searching for the Texas condom today and the pharmacist i asked was young and didn't know what it was. I'm sure he was thinking "Everything is bigger in Texas! Must be a special order item.". He did offer some advice on where to get one in town as...
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    First Question for ALS Caregivers?

    Uh oh, didn't know that....I will do that now. Anything else I should know? We have made reservations at handicapped accessible hotels for the drive. We didn't want to fly, Danny wanted to see some country. I am hoping he can ride seven hours a day...
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    First Question for ALS Caregivers?

    I hope so : ) Deep Sea Fishing would be fun. I think it would be better if he caught one than me. Anything big on the end of the hook and I'd just be yelling, get it off! He wants to rent a sand wheelchair to get down to the water. I have looked at that and we can do it. Gotta figure out...
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    First Question for ALS Caregivers?

    Thank you mary pat. That is a great idea and I will investigate. It sounds like just the suggestion I was looking for. I thought I knew what nitty gritty was, and not the Band, before, but I didn't. Thanks again.
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    First Question for ALS Caregivers?

    My husband was diagnosed in June of 2012. He exhibited his first symptom, drop foot, in Oct of 2011. He is wheelchair bound but has the use of his left hand. He has strength left in his arms and uses those to help whenever he can. His speech and swallowing functions are deteriorating. We...
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