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My last post was a plea for help. Things seemed to get very bad very fast. Then at 11:15pm on February 12th, I held my mom's hand and watched her take her last breath. My heart is aching, but I can see her so happy and so free in Heaven already. And she is already making sure I know she's...

My mom is at the end. You all have been an immense help from the beginning, before we even had a diagnosis. I need you now more than ever. She has slept all day for the past two days. Today she got oxygen and I think that is part of it. But I think we are also just close to "the end". What...

Hello, everyone. My mom's discomfort level has recently increased rapidly and drastically. We are reaching the very end of this battle and comfort is priority above all else. Hospice has provided liquid morphine drops that they say help her breathing (maybe by making her more calm?) and also...

I need help from all you experienced folks out there (PALS and CALS)... My mom needs to start tube feedings, but the first time we tried it made her stomach hurt. What is the best way to introduce the feedings to her system to prevent this? How much do you start giving and at what time...

My mom fell today and was prescribed pain meds in liquid form so she can push through her tube. Is the process any different from taking crushed meds through the tube? Do you still need to flush? Will mixing with water dilute it? I don't know the best way to administer a liquid form. Thanks...

Hello all! We are in the very early stages of a bathroom remodel. My mom's bathroom is TINY. Right now we are just discussing options and then an architect friend will come over and tell us what is possible. Has anyone done a remodel or addition? What do you recommend as far as stuff to...

My mom got her PEG tube placed Wednesday and we were informed that extended release meds should not go through the tube (after they are crushed the pill loses the ability to release slowly over a long period, instead you get the whole dose at one time). Is there anyone on Wellbutrin who also...

This is confusing, so try to keep up :) On 11/12/2012 my mom had a Complete ALS Evaluation (lab panel) done by Athena Diagnostics, ordered by her local neurologist after he made the diagnosis of ALS, but before she saw a specialist in St. Louis who made the official diagnosis. At the time of...

I want to get my mom a medical alert system. Any suggestions? I want something with fall detection and something that will call me and a few others before calling 911. The one I have found that I like the most is Medical Guardian, $29.95/month, no contract, no fees for equipment. Freedom...

My mom was just diagnosed 12/28/12 and she seems to be progressing rather quickly. Just in this past month, she started with tingling and twitching in her hands and now she complains that her right hand is very weak. She is choking more. When do you decide to get a feeding tube? Also, her...