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  1. M

    Hello, I was wondering if anyone could help answer some of my questions. My dad was diagnosed in...

    Hello, I was wondering if anyone could help answer some of my questions. My dad was diagnosed in September with ALS but the last time we went in due to my dads progression or non progression for that matter the doctor seems to think mybe not ALS. His first symptom started two years ago in his...
  2. M

    Update - as promised

    Yes my dads FVC is in the mid 80s. He actually goes today for his CPap, he also had issues the next day after his sleep study. Well keeping u in my prayers!
  3. M

    On the REAL Dex Drug Trial as of Today:

    When are they thinking this drug may be available to everyone?
  4. M

    Update - as promised

    Hello Luke, just reading your posts and your symptoms seem a lot like my dads. Do you have fasculations? My dad has not yet been diagnosed with ALS but has many similar symptoms. His doctor just moved to another state and left him with " your voice is changing it sounds more like it could be...
  5. M

    Still unsure!

    Yes he had an EMG, results left his diagnoses unknown. His walking was very bad he felt a wheelchair was not far in his future. He started the rilutek and THC the same day and he walks better now. It's not bad and good days. He just said his legs feel stronger. He does not smoke the " wacky...
  6. M

    Still unsure!

    Yes I know the disease is never the same for each person. It can go fast it can go slow and it comes out differently in every person. As of now we take it a day at a time. He has an appointment on Wednesday with a doctor so hopefully we will get some more information. Thank you for the comments!
  7. M

    Still unsure!

    Well here lies the problem, he does not not have a doctor at this moment. His doctor moved to another state. He has an appointment in December with another doctor but his Appointment to get the DPS in is in a week. I guess my question is do the symptoms he I having with the speech and the...
  8. M

    Still unsure!

    Hello everyone, I'm new to the forum and have been using some questions about my dad. He was recently told by his doctor he thinks he has it by the sound of his voice. He started having symptoms a little over a year ago. He started to lose the dexterity in his fingers on his right hand. It just...
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