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  1. MommyRissa

    Back Again...

    This is my last post but I thought this needed to be said.... I know that answering this part of the forum is extremely difficult for some. I know that some people don't even want it here anymore, and I can understand that. But I think that the problem is that none of us who come here...
  2. MommyRissa

    Back Again...

    Truly I am sorry for my insistence on posting here when I have been told that what is wrong with me is not what I fear. My life since July of last year has been difficult to say the least. I have had a spinal surgery or cranial surgery every month for seven months now, due to all the fun...
  3. MommyRissa

    Back Again...

    I'm not sure if any of you remember me or not, but I have been here before. I hope you all had happy holidays. When I first came here it was because I had what I thought was right side weakness. I in fact had none, but I did have pain and twitches. After quite a few tests I was diagnosed with...
  4. MommyRissa

    Hello again..

    So far I've been diagnosed with Fibro, Carpal Tunnel, and BFS. I had one of the medical staff at the doctor's office suggest MS. I prefer nothing if possible. I'm so desperate I've even considered taking the antibiotics that started all this. I haven't been tested for Lyme yet though. Nighthawk...
  5. MommyRissa

    Sound like ALS?

    You sound just like me but I'm eight months in and still don't know a thing. When is your EMG scheduled? Mine showed nothing abnormal except for reinnervation that was not chronic and no denervation. This is supposedly because of Carpal Tunnel. How did the neuro judge your weakness?
  6. MommyRissa

    Hello again..

    Hey all, I've been here before, about eight months ago, and you were all very kind and helpful. I couldn't have asked for better advice or reassurance so here I am again seeking the same thing. I know how precious your time is and I appreciate it. I have checked in on everyone from time to...
  7. MommyRissa

    I saw where you said that you have been doing strength tests at home and while it's comforting...

    I saw where you said that you have been doing strength tests at home and while it's comforting, you may do more harm than good. Trust that if you had clinical weakness that you would not be able to do any of those things. The heel to toe walk would be physically impossible. Have you ever sat in...
  8. MommyRissa

    Need Advise-Please Help!

    Have you given any thought to fibromyalgia? With multiple EMGs that are clean and nothing alarming on a physical examination, it's extremely difficult to be persuaded that what you have is ALS/MS. There are a lot of things that cause pain. I've had body wide pain and twitching for a month or so...
  9. MommyRissa

    Please help: ALS fear consuming my life

    John, It's okay to be afraid. It's okay to break down. It's okay to worry. Stress and anxiety can manifest things in your body that you never imagined possible. I'm not saying that's what's happening, but try to keep in mind that everything could be exaggerated by what you're feeling...
  10. MommyRissa

    Can EMGs be too early?

    Yep, shouldn't have read that one. *facepalm*
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