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In my case the EMG was very accurate. I had 17 falls before my neurologists decided to order an EMG. One of them had previously told me I did not have ALS. He did the EMG and changed his mind. Meanwhile, I had gone to an ALS clinic where the EMG was repeated. It showed damage to the motor...

What I know about fecal transplants is that they are a cure for a condition of the gut caused by too much antibiotic use. They are a relatively new discovery. I never heard anything about them related to neuromuscular disorders. Eileen

All the feeling expresses by the original poster are familiar to me. When you exercise and eat right all your life, you expect you will be healthy. Then you get hit with ALS. I went from the cane, to the walker, and now I'm bed-ridden in a nursing home! I never expected to be here, and I'm angry...

I had muscle seizing problems after withdrawing from benzos. Flexeril has the same effect. ALS has the very same effect. I have cramps in my quad muscles no matter how much I stretch. Your problems sound like benzo withdrawal and not ALS. You would have other symptoms if you had ALS. Eileen

Julia, ALS is hard to diagnose, but it can be ruled out or in by a nerve test, called an EMG. I was told by a neurologist that I did NOT have ALS, but when he did the EMG, he found out I did. So have the test and let us know how it turns out. Eileen

Very interesting, Nikki. How did you find out about this? I didn't see any other news about it. There are more than one genetic defects in ALS, according to my neurologist, James Berry, who does ALS research. Mine is C9ORF72, discovered in Ireland in 2011. I have the genetic from of ALS, as I'm...

You have my sympathy. My speech is getting more slurred, but I am already in a nursing home. I had a prior disability before I got the ALS so I didn't have to deal with work. I'm surprised your arms and legs are good enough for you to work. Your employer may be able to give you work that won't...

The dex------------------ drug did not work. I was in Mass General Hospital when the results of the clinical trial became available, and it didn't work. Too bad. Eileen

I was diagnosed in August 2012, a couple of months before your father. I was falling for a year before the ALS showed up in EMGs. I take riluzole, which is supposed to extend the lives of ALS patients. I have no pain at all, just weakness and loss of function in my feet, I got a foot brace...

I don't know what part of the world you are in, but Children's Hospital in Waltham, MA, U.S., has a clinic that allows ALS patients to try out methods of communication when the power of speech is lost. If this hospital has this service, then other cities must have it, too. Try calling the ALS...