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  1. K

    Options for genetic testing? And paying for it?

    Hi all, Haven't posted for awhile and so much has changed. My (future) MIL has declined rapidly since Christmas Eve and is now at the Hospice Care Center. They think she likely only has days left. The hurt we are experiencing cannot be put into words and I have honestly been so emotionally...
  2. K

    Feel free to email me. [email protected]

    Feel free to email me. [email protected]
  3. K

    Young Care Giver

    Hi Jackie, I am 25 and my future MIL ( i call her my MIL for convenience) just got diagnosed. I am a full time student and commuter, and, while she still lives with her husband, she may eventually live with us and stays with us often. My fiance works daily and because I am in the healthcare...
  4. K

    Important Meetings Coming Up at the FDA ...

    Done and done! Is there a way to view the comments that have been submitted by others?
  5. K

    Housing options for my Mother-in-Law who was just diagnosed:(

    Great suggestions, all! I think clicker training sounds like a great idea I'd love the info! I can't begin to express how helpful everyone has been! I went to an ALSA support group last month alone (before her official diagnosis) just to see what it was like (hoping for the best, preparing for...
  6. K

    Housing options for my Mother-in-Law who was just diagnosed:(

    Sorry these posts are so long! Writing it all out helps me sort out the issues and possible solutions so much better than spinning these thoughts in my head. You all are such a wealth of knowledge and support, thank you!
  7. K

    Housing options for my Mother-in-Law who was just diagnosed:(

    Thank you all so much for your input, everyone. I had a feeling that her living alone would not be a viable option. We are planning to eventually live with her once our lease is up but that isn't for 6 months and the rate things are going, we want her out of her current house YESTERDAY. Our home...
  8. K

    Housing options for my Mother-in-Law who was just diagnosed:(

    Hey all, this is actually my second post since my mother-in-law's (MIL) ALS diagnosis earlier this month. This diagnosis, as you all know, is devastating. On top of it all, her housing situation is not ideal and we are trying to figure out the best option for where to move her... She...
  9. K

    A long year.

    Hi Ryanw, how did you appointment go? Hoping that you not updating this post means they determined it isn't ALS! I am working on getting my mother-in-law referred to the ALS clinic at Virgina Mason so I wondering what you thought of it? Were they able to diagnose you? Did you meet with a Dr...
  10. K

    If you could improve one thing about ALS...

    Whoops, meant to say I feel like YOU** have echoed..."
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