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  1. rcharlton

    rcharlton passed away

    From Richard's wife: Richard passed away suddenly on Saturday April 21st. I know he was a very dedicated and active member and moderator. Every time I looked over at his computer he was on this site. I want to let you all know how wonderful Richard is. He was an angel on earth; a light in the...
  2. rcharlton

    A Thousand Words

    There is a new Eddie Murphy movie coming out entitled "A Thousand Words". Here is a synopsis: Eddie Murphy is Jack McCall, a fast-talking literary agent, who can close any deal, any time, any way. He has set his sights on New Age guru Dr. Sinja (Cliff Curtis) for his own selfish purposes. But...
  3. rcharlton

    PALS Club

    I'm looking for PALS to join my new club. How many times do you need to ask someone to change your shirt during the day following drooling episodes, spilled tomato sauce, dribbled toothpaste? How many times have you had to throw out a shirt due to stains following drooling episodes, spilled...
  4. rcharlton

    Mobility on a vent: will I still be able to play hide'n'seek?

    So a trache and vent are on the horizon for me - and that horizon just got a whole lot closer. My biggest concern is loss of mobility. My hands and arms are useless but my legs are at 85-90% and I'm still very mobile. Playing games with my 4 year old daughter, kicking a soccer ball to her...
  5. rcharlton

    Hands-free AAC on the go?

    So my speech is shot. I'm looking at a way to communicate when I'm out in public. I'm still walking and I am pretty handy with my feet. I need a portable device that I can operate with my feet. I was thinking of strapping a 5" or 7" tablet to my left leg and typing with my right foot -...
  6. rcharlton

    Improvements?

    I am confused when participants in drug trials claim that their symptoms improve or are less severe. From my understanding of ALS, actual improvements will only occur when the dead motor neurons are regenerated or replaced with new ones. An incredibly tricky process. Our bodies cannot...
  7. rcharlton

    Poor Sunny

    Sunny is our 10 year old beagle. She was bred in a puppy mill and spent the first 3 years of her life in a small cage crowded in with other dogs. Then she was sold to a vet school to be used as a lab dog. Students used to practice operating on her. At the base of her spine there is a white...
  8. rcharlton

    No respect

    True story Fall of 1986 19 years old. Just started a new University in a city where I knew no one. Living by myself. No friends. Just returned from visiting home and being dumped by my high school sweetheart. Biked over to the local comic book shop to drown my sorrows in boyhood...
  9. rcharlton

    This has to stop!

    Sleeping all day. Out tramping all night. Treating our home like a hotel. Coming in and demanding dinner then heading straight out again. Some times we won't see her for days - never letting us know where she is. Every day a new boy waiting outside for her. I don't even want to know what...
  10. rcharlton

    Do allergies make you cough?

    I just sent one of my caregivers home. She was preparing my breakfast and it sounded like she was coughing up a lung. I kept asking her if she was sick but she kept insisting that it was only allergies. However she had had a phlegmy productive cough. My FVC is about 30% and a bad chest cold...
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