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Thank you so so much everyone for your tributes and thoughts about Richard, and for posting his obituary here. He passed away from what the coroner believes to be a heart attack while napping. The way he died speaks to how he lived his life. He always said he wasn't going to worry about the...

From Richard's wife: Richard passed away suddenly on Saturday April 21st. I know he was a very dedicated and active member and moderator. Every time I looked over at his computer he was on this site. I want to let you all know how wonderful Richard is. He was an angel on earth; a light in the...

Hi Caroline Glad to hear your still fighting the good fight. You are missed. Sorry to hear about your upcoming surgery. Does sound scary and I hope it won't be as bad as you are imagining it. Hope everything works out. Take care Richard

Welcome Darlene. Sorry to hear about your husband. I moved your post to a thread of its own. http://www.alsforums.com/forum/current-caregivers-cals/18808-any-tips.html

When does your dad have problems with the drooling and saliva? Is it while he is using the bipap? What kind of mask is he using? Nasal or full face mask? My soft palate is very weak and cannot properly seal off my nose from my mouth. Whenever I wear a nasal mask I can't stop the air from...

Depending on what muscles are affected some PALs will have difficulty breathing lying down while others will have trouble breathing sitting up. There are three major muscle groups involved in breathing - diaphragm, chest wall and abdominal. A weak diaphragm will cause breathing problems while...

Thanks so much for the kind words. I felt so honoured by Sally and John's posts that I had to show them to my wife. I'll let you know what she thinks - as soon as she stops laughing that is.

Pardon me for asking, but does she have someone around to cut food up for her? In most cases independence is a good thing - I cling to every last shred of independence as long as I can. But when it comes to ALS and eating - independence has to take a back seat to maximizing food consumption...

Thank you very much. I was wondering when someone would come to my defence.

OK Poet Christopher Robin You need to take a couple of steps back. When did I ever say that ALS patients don't need to be looked after and should take care of themselves? I'm a firm believer in socialized medicine and public support for those in need. In fact, over the past 7 years I...