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    New ALS fighter

    Welcome, I think one of the first Things I did was to contact my local ALS Association. They have a wealth of knowledge that you need. They should also have a loan closet for equipment you may need and, support groups. They can also pay a home visit to determine what your home may need. patrick
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    best time for trach

    My trach was planned. I made the decision based on FVC. When I hit 20% or below, I knew it was time. I didn’t want to wait for an emergency situation. I was home in ten days and, my caregivers were trained. It has been 2 1/2 years. patrick
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    Political Advertising

    It's appearing on my home page. It's a Trump survey.
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    Political Advertising

    Why are the forums posting Trump political adds. This should be a safe place free from politicians Patrick
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    Feet and calves swelling

    Hi Don, I've had that problem. I use support socks to keep the swelling down. They're not easy to put, but you want to give them a try. Patrick
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    New to forum

    Welcome to to the forum. It's a great place to ask questions and get honest answers. Patrick
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    Technology

    Hi Texasmom, Now could be a good time for an augmentive communication device. Al you would is Rx from your neurologist. Stating you could benefit from a device. I'm on my second device from Tobii (You get a new one every 5 years). Patrick
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    ALSA, ALS TDI, etc

    Most local chapters of ALSA are run and funded by the Chapter itself. They can always put the money to good use. Patrick
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    "50% oxygen" with hospital BiPAP?

    You are correct that using oxygen. But for short term use you should be ok. It's long term use you should worry about. It's not unusual to be put on oxygen after surgery. Sedation can make breathing more difficult. Patrick
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    Father newly diagnosed

    Glad you found us, it's a great place to ask questions. As for a Bipap, most of use a trilogy. It can be used as a non-invasive Bipap, and is easy to switch to invasive ventilation (tracheostomy). Patrick
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