Search results for query: *

years since I checked into this post. Still here people. :)

Yep what IgelB said. :) You can find the dosing regimen in the ALS Untangled article on Lunasin.

Just settle in for the long haul, and remember... It's a process, not an event. If it even just slows the disease down its worth it. I won't make any wild claims, but I know it's helping me. Just wish the stuff was cheaper...

After alot of experimentation I have settled on very simple shakes. I do skim milk with provantage in the morning and various juices with the NOW in the evening. If it gets too thick I have a hard time getting it up the straw.

I was actually scheduled for a PEG last August, cancelled it, rescheduled it for November, cancelled it again and never rescheduled. I absolutely will get one if my weight and FVC start going down again. So far I have just found it not necessary yet. I have also already made plans for a...

Just a quick update this time. My weight is still completely stable, I don't even really think about it anymore. My legs have definitely gotten weaker over the past few months and I was feeling a little discouraged about that when I went in for my three month FVC test, when low and behold I...

Thanks guys, I will definitely update every so often. I consider myself an optimistic realist and while I would love to get better I would gladly settle for not getting worse. It would be great if we could all just will ourselves better but I don't think willpower will grow motor neurons...

Six Month Lunasin Report Started on the Duke University\McDuff regimen on Aug 15\2015. Weight: 181 lbs FVC: 46% ALS FRS: 25 For the previous year (Aug 2014 - Aug 2015) I lost about 3 lbs on average between visits to my ALS clinic, so about 9 - 10 lbs for the year. My FVC declined...

2016. It’s been five years with ALS now. It’s been a rough time but I’m still here. I can still walk a bit, my family can still understand me and my mind feels sharper than ever. 190 lbs now. That is a total of 9 lbs. gained since starting Lunasin in August. Here's to another 5 years........

I was was working out twice a day, running marathons and working 10-14 hours a day prior to onset. I have some articles on my facebook page about athletes with ALS. https://www.facebook.com/ALSeanTagert/