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  1. L

    Breathing issues

    Hi. I know this has been dealt with in the past, but have some concerns. Have started to feel short of great at times - no morning headaches yet. Breathing last tested about8months ago. I'm in a community without a neuro, nearest ALS specialist 7 hours away, but they can test pulmonary...
  2. L

    How to deal.....

    Hi! I've been trying to stay focused on positives, but a few things have been getting in my way. I'm trying to rid myself of the frustration. A few days ago, a "helpful friend" whom I haven't heard from in a couple of years called - I first thought because she was concerned. Turns out she...
  3. L

    Mind Fog

    Hi once again. Two weeks ago I had another EMG, and was given the dreaded diagnosis of "most likely ALS". Before that, I was reassured that this was PLS, so a somewhat better prognosis. I immediately went into a kind of "brain fog" of fear and depression. I'm continuing on with that, while...
  4. L

    Advice Needed

    Hi! I find myself with a dilemma. I have had some progression of spasticity and clonus to my second leg and some now presenting in my left arm after a pretty steady year. I use a walker in my apartment but am slow with poor balance. I have to move because of my stairs and here have only two...
  5. L

    Any Help Appreciated - Cleansing?

    Hi once again. I wondered if anyone had cleansing of heavy metals suggested to them. I realize that this may normally be a good thing, but am cautious as to effect on liver and kidneys. Any advice or light to be shed on this, thank you! Linda
  6. L

    Worrisome new symptoms

    Hello everyone. I haven't posted for a while, but have been reading and learning. I really appreciate all the kind knowledgable people who contribute. I was diagnosed as probably PLs, maybe Hsp last fall with UMN symptoms in legs, signs of increased reflexivity in arms, clear MRIs, and a clear...
  7. L

    Exercise with PLS

    Hi! I have UMN symptoms, in my left leg with some hyper reflexivity showing on right leg and left arm. I walk with a walker due to balance problems. Symptoms started probably 2 and a half years ago. EMG on left leg, left arm and back clear so far. Neuro said "probably" PLS, but not...
  8. L

    Things are just starting to sink in

    Hello. I have followed posts here, as concerns have been with me for some time. In 2010, summer, I had noticed dragging of my left foot - slight, but required attention. Also left leg did not co-operate or move as easily as my right. Dr. Did MRI of brain and lower back - both clear...
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