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Hi Al, not wanting to disrupt thread, but for the first year or so of tests, I had 2 "clean" EMG's, and they were looking at PLS. (These were from 2different places). Then I was booked in a clinic, and to have a third where the denervation and reinervation showed up. Progression is supposed to...

Hi, Shawn. I found that the random fasciculations were a lot worse early on (before I was diagnosed and they were getting clear EMGs) than they were months later. They did disturb my sleep at times. Now I just have them once in a while, not too persistent. I so far don't have serious...

Thanks for the helpful info. I have primarily UMN symptoms, but my torso seems to be progressively weaker, not my facial muscles as yet. I have had a degree of sleep apnea for some years. Linda

Hope you're starting to feel much better, Elaine! Wishing you the very best, Linda.

My sincere sympathy for your loss. May your wonderful memories bring you comfort. Linda

Thanks, Jane and Max. Caring folks like you make the journey a bit easier, knowing that someone understands. I hope you are both doing as well as possible, with some great moments. Linda

Yes, he has posted on winning the fight. I hope he's doing better. Linda

Hi Max. I was concerned as well, so checked the other website, and apparently he has been having some problems with extreme pain. Hope things are improving. Linda

Thanks , Igelb, for that excellent response. I really am having a variety of issues now with mobility, being inside for 6 months (no lift), and very little medical help. I'm scheduled to go to a nursing home soon, so am struggling with anxiety and depression as well. Just trying to keep my...

Hi. I know this has been dealt with in the past, but have some concerns. Have started to feel short of great at times - no morning headaches yet. Breathing last tested about8months ago. I'm in a community without a neuro, nearest ALS specialist 7 hours away, but they can test pulmonary...