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I read your post and froze. I was diagnosed a month earlier than your sister and have had some progression but in the scheme of things, it is not that significant. I feel for you, your sister and your families. I can't imagine for a moment how difficult it must be. I feel blessed that mine...

Hi everyone, I have decided to return after taking a break from all thing ALS since being diagnosed in September last year. I felt I needed some time away to come to terms with my diagnosis and the impact it has had on my life. I have had another follow up with my neuro and have had some...

Hi there I am in a similar position to you. I received my MND diagnosis a three weeks prior to my 43rd birthday. I have a beautiful little 2 year old and a wife I love to bits. I received my diagnosis on 10 September so have had some time to think, adjust, think, reevaluate and basically...

Olly You are right about MND being the overarching diagnosis. I don't have a sub category and that doesn't seem to be a priority, so I found it very confusing when I first posted here as I didn't know that MND has different names in different countries. All I know is that I have an atypical...

MLane Waiting is by far the hardest part, until diagnosis that is, then your definition of hardness changes on a daily basis. Being scared of a potential diagnosis is understandable, I remember my past few months being full of fear and emotion. I only received my diagnosis on 10 September this...

4 clean EMGs = happy days. And I agree you must believe so for now. I am not discounting your concerns. Clearly you have issues but rest assured ALS/MND is not one of them. Keep vigilant, if things change see your doctor but for now. Live your life. I wish you well Ian

I am not the EMG expert but I would have thought that it would show any changes potentially long before other symptoms develop, certainly in my case. I want to use an example I think has previously been used. Just because you have a clean EMG now, doesn't preclude you from developing ALS / MND...

Mlane There is another post here, that I have just responded to that addresses this to some degree. I have MND, my EMG showed abnormalities in January, before any other clinical signs of weakness (I still don't have clinical weakness on the score they used only last week). I am not a...

None of mine were clean. They showed symptoms that were initially treated as something else. My neuro wasn't happy and said it may take sometime but She saw something in the beginning that the others didn't. I have to trust her. If you've had 4 clean emgs I would get some assistance with...

I also have a well respected Professor of Neurology that knew something was wrong and relentlessly and persistently followed it up until she found an answer. It wasn't the answer I was looking for but I can't change it. I have to make Lots of happy memories for myself, my wife and importantly...