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    Questions

    She hasn't really tried the bi-pap yet but they have given us some anxiety meds to try when she is ready. The latest battle is constipation... I think she is just too weak to push pudding consistancy poop out. She poops at least 2 times a day but she says its only a little bit and then the...
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    You found me jackie....lol

    You found me jackie....lol
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    That would be great to do. You can chat here or look me up on facebook tammy koonsman

    That would be great to do. You can chat here or look me up on facebook tammy koonsman
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    Scared of these later stages ! And what to expect

    I too am wonderingbthe same. My mother inlaw refuses bipap and ventilator. Her lung capacity is at 42% as of nov 8th but I feel its dropping even more. She still walks but very slow. She does have a feeding tube but has lost 9lbs in the last month and doesn't do anything but sleep and go to the...
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    ALS famlies with children....

    my children are 11 and 13. They are grandchildren to our pals. We all live together and support her everyday. I am her caretaker.
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    I will make sure to watch that 1. Ty so much.

    I will make sure to watch that 1. Ty so much.
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    Questions

    My mother inlaw just received her Bipap and is refusing to get used to it. She keeps saying that it won't be long till she's going to pass on and feels that she doesn't want to use another equipment. Her onset problem of drop foot began in May 2010. She was diagnosed Aug 2012. She is walking...
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    Caregiver of Mother in law

    She just got the bipap yesterday but it will take some getting use to.... she says its very hard to breathe with it as she feels it takes her breath away. she's unable to get medicare due to age and the fact that she hasn't worked in 10 years. She has tricare prime and has an evaluation for the...
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    Caregiver of Mother in law

    Thanks for the moral support. Some days are better than others. The newest struggle is cooking.... she says that when I cook in the house, then she has a hard time breathing. I notice that its a little better when things are cooked in the slow cooker but if its on or in the stove then she...
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    Breathing Issues

    My mil gets short of breath while walking. Our new problem is she can't breathe when I'm cooking or baking. She is very sensitive to smells. Her bipap comes tomorrow as her lungs are at 42%. When she is sitting, her oxygen is 95%. Never had it tested while she is walking with her walker. I will...
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