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THank you, I have been a bit better emotionally the past couple of days with just those thoughts. I am so grateful to everyone on this board. I feel that while my family loves and cares for me, it is impossible for them to know my rollercoaster ride and hearing your words of encouragement and...

My kids are 18, 15 and 13. The 18 is a bit of a self absorbed individual so outwardly she appears strong. I know it will be hard on her as I have been her proverbial rock as she calls it when she has gone through all that caddy high school stuff. My 15 is very sentimental and cries all the...

Yes, actually I saw the neuro, then the next day he set me up for EMG and NCV and that evening he told me he strongly suspects it is ALS and further that he did not think it will be anything else but ALS. He was scheduling my for a brain scan and spinal tap which will be in two weeks. He tells...

Thanks, trying hard to keep it together. I have had symptoms since early July 2012, maybe late June which started in my back and hips. The leg thing I did not notice until mid August and my family practictioner sent me to a nuerologist. I saw him last week on Thursday and on Fridany I had the...

Thank you for the advice on SS and Medicare. I will do so asap. I am not a veteran but thanks to those for that suggestion. I need to find a support group meeting. I don't know what is right to do in terms of my kids. One is in denial, holding out hope. Other is very sad and afraid. I...

Thank you everyone, I'm just going through all the replies and trying to figure out how to navigate through this site, particularly how to reply to one specific reply or does one have to post a general thread.

Also, the neurologist told me yesterday that he had been hoping it was some other diagnosis but given the overall findings on the nerve conduction test, that is what led him to the conclusion. I am assuming that the stress that one goes through as well as the emotional roller coaster ride, that...

Hi, thanks for the response. The morning after I posted my first posting, the hospital called and said that they could fit me in for the two tests which I took yesterday and the had the follow consult with the neurologist

Hi my neurologist just diagnosed me with ALS. I am so confused by different searches on line about next steps, 2nd opinions, etc. He saw me once, I was complaining of back problems that continues to be present after two months although much improved but now I have leg weakness. I was unable...

Hello, I had been experiencing some symptoms and visited my neurologist today. He was non-committal about what my problems could be. He stated it could be something neurological that is very treatable to something a lot worse. When I asked him what that "worse" would be, he indicated ALS "but...