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My mind was so crazy after my diagnosis 08/2012. I just wanted to get away. So we spent the week of Christmas in Disneyworld. There were 12 of us in all. Family came from all over. It was great being all together and having a good time. We went our separate ways during the day, but had dinner...

How do you know which wire is the ground wire? I have one wire that is about an inch longer than the others. have no idea how it got pulled. Happened about 2 weeks after put in and the pacing felt good then. Problem started after the "Pull". I'm non verbal, my husband makes the calls and getting...

I'm bulbar onset diagnosed 8/12. 12/12 i was started on BiPap. I have traveled a lot. Taking my Scooter & BiPap with me to a week at Disney World, 2 week cruise to Hawaii, 1 week cruise to Alaska, weekends in New Orleans, Vegas, & other states. I now also have a feeding tube & diaphragm pacer...

Congratulations!

Hi, I received my DPS in April. All was fine , had an adjustment in May. Settings on low, just felt slight tingle. In June I reached with my left arm, across my body to close the sliding Van door that was to my right and slightly behind me. I felt a horrible pulling sharp pain in the area...

I'm still using a scooter, but Pals in my support group all have trays attached to the lower back part of PWC that the trilogy sits on (no bag).

I also go to Barrows in Phoenix and very happy with the care I get there. Love, Love Dr. Ortega! Great multi-disciplinary clinic and they recently moved into a beautiful new office space.

I don't need one yet, but a friend of mine has a good system set up. His head is immobilized to the headrest of his wheelchair(with a sport head band) and reclined to a comfortable position. Calibration is done in that position.

Great to hear Jim is stable! I continue at what I believe is slow progression for a Bulbarian. Speech more slurred, don't eat much ( mostly use PEG tube). Still walking unaided around the house, driving, & self care. Good luck on the house improvements. Last year I had the pool area...

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