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You might consider getting a hospital bed so you can elevate him enough to relieve the stressful breathing. Hospice should be willing to provide one for him. It really helps my PALS.

Yes, a suction machine would most likely be helpful to clear out what she can cough up. We have used one for my pals for 2 years now and it has really been helpful to get anything out of his mouth that he can't spit out. It also help to get the mucus out of his mouth before it gets to his...

The description you gave of your tip fits exactly what my pals is like. I have had to replace the one on my husbands PEG twice now. It has not been difficult at all. You remove the tip by just pulling it out and attach the new one by slipping it into place. The first one we got from the Dr. that...

We use the Easy Pivot to move my husband and it does have wheels so we can move him from one room to another. I love it! He prefers us to use it over the Hoyer. For helping to get into position on his easy chair, I place a pull sheet under him and lean him forward a little and pull at the sheet...

Oh Shelly, I am so very sorry. You did such a wonderful job in everything you did for Fred, from caring for him to the wonderful tribute to him to begin this thread. You are a strong and wonderful woman. I wish you comfort. Kris

WOW! What an amazing young man! I truly appreciate what he is doing. Kudos!

I suggest you ask the MDA or ALS association loan closet if they have what is called an easypivot patient lift. We borrowed one from the ALS association and we find it is the method we like to use to get him up and move him back and forth from the bedroom to the livingroom. We also use it to get...

Hi Poppies, sorry for the delay in response. I haven't logged into the ALS forum in quite a while. I hope you have been able to help your husband in letting his loved ones know his diagnosis. Each person has to handle their feelings in their own way. My husband chose to ignore it as much as...

Just a thought. It might not work for Fred, but if noone ever mentions it, you might not ever hear of it. I found out from a therapist. I know what you mean about a simple "you are doing a great job taking care of him" lifting your spirits. You know...You are doing a great job taking care of...

Hi Shelly, Thank you for sharing your thoughts about hospice with me. I really think it would be a good move to make for Dave. Now I just have to convince him. I'm wondering if you have heard of the easy pivot lift? We have one for Dave and it works great. Without it he would have been bed...