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I am in the same situation as you. They don't know if mine is ALS or MMN either. I was on ivig and thought it was helping but now I'm weaker than before. I'm currently on rituximab. Still no clear answer after almost 2 years. I hope they figure it out soon for you. Best of luck to you.

Thank you for all the info. I'll check into all of it and best of luck to you too.

I've had an MRI that showed nothing, 3 emg/nerve conduction studies by 3 different docs & they all thought als, a spinal tap that ruled out ms, and blood work that showed elevated antibodies. I'm seeing a specialist in St Louis but after the initial als diagnosis now he's not sure if it's that...

I am 32 and started having trouble moving my fingers on my right hand, weakness in right hand and legs, twitches that started in my right arm but now everywhere, and extreme fatigue. I was diagnosed with als last year (by 3 diff doctors) but my last neuro wasn't 100% so he put me on Ivig. For a...