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  1. J

    2 1/2 years and still not sure.

    Yes another EMG scheduled at UPMC Pittsburgh with Neuro next week. Had CK blood work yesterday. My Nuero who said I had Parkinson's has me seeing someone else. If you read my last thread you will know the craziness my life has been. Twitching has increased with weakness, lethargic, unmotivated...
  2. J

    ALS, the only thing not ruled out?

    My new EMG was pushed to today at 4pm. See what happens? On another note: has anyone ever experienced a feeling in bottom of feet like there is a mass of flesh, lump or something under the skin. My right foot feels like there is something there right where my toes start. Very strange feeling...
  3. J

    Got the diagnosis and a quick, ironic tangent

    Sorry to hear Kenny. Hang in there man and know you are in my prayers. I have another EMG scheduled next week myself. Take care.
  4. J

    ALS, the only thing not ruled out?

    Thanks Spring, Ed, Ken and Hi. This is truly a great forum/message board that is out there. I appreciate the feedback and words of encouragement. It looks like I will be seeing another Neurologist at UPMC for another EMG. He wanted this done. This is a different hospital vs. the wizard that...
  5. J

    ALS, the only thing not ruled out?

    Notme: I have been searching on google and did see something like that too in regard to the muscle biopsy. I think it had something with seeing damage to the nerve endings. I am near cracking up. Today I have those flaciculations in my calfs. My legs feel very strange when I am walking. I am...
  6. J

    Good days/Bad Days early on?

    Ken: I am looking at Igenex to possibly get a lyme test. I have heard many of the labs do not test for it correctly? Good luck man.
  7. J

    Hello: I am concerned I may have ALS and your post in Kenwood's forum struck me since this is...

    Hello: I am concerned I may have ALS and your post in Kenwood's forum struck me since this is how I feel on a daily basis. I am dealing with a shabby Neuro Doc who doesn't think it is ALS. I wasnt to believe this and move on but am not sure since I feel like crap. I went out to lunch today and...
  8. J

    Good days/Bad Days early on?

    otta: Wow that sounds like me right now. What was the main thing that made the Docs say you had ALS (if you don't mind me askin)?
  9. J

    ALS, the only thing not ruled out?

    brooksea: Yes this was the ALS specialist at AGH in Pittsburgh, PA. Said with complete confidence that it would show up on the Muscle Biop. When we first arrived and took a call from his daughter about a sports event then even left the room to talk with her made me feel like I wanted to get up...
  10. J

    ALS, the only thing not ruled out?

    Oh yeah, he also said the muscle biopsy would show the ALS. I read elsewhere muscle bio is used to rule out other issues and is not used for ALS. At the end of the day I just want to know what the heck is wrong with me. The DAT showed no Parkinsons. If I didn't have that scan I would still have...
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