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Chase I know exactly how you feel. I lost my husband on Nov 28,2012 less than a month before Christmas. I did not celebrate Christmas I just couldn't. I told everyone that I was not Christmas shopping or sending out cards. I wrote my kids checks so they could buy themselves what they wanted. We...

Just found out today that when they studied the results of the people having the drug and the people on the placebo there was no difference at all. They are stopping the open label study as the drug has no effect on ALS.

I think we all feel the same way. Some days I feel like I can't take this anymore and want to runaway but I love my husband and would never leave him. I know that one day I will having nothing but free time and I will miss not having him to take care of.

If you contact your local ALS Society they probably have a free equipment loan program (like we have in B.C.). My husband is now using a device called a LIGHTWRITER that was provided for his use free of charge by the ALS society. It is a small, portable keyboard that you type what you want it to...

Thank you Ottawa girl for the welcome. Yes I wish I was like most people, not affected by ALS and pretty much unaware of what it is. But unfortunately my husband was diagnosed in Dec 2010 it was not the Christmas present that I wanted. I should have checked out this forum a long time ago not...

Thank you Ottawa girl for the welcome. Yes I wish I was like most people, not affected by ALS and pretty much unaware of what it is. But unfortunately my husband was diagnosed in Dec 2010 it was not the Christmas present that I wanted. I should have checked out this forum a long time ago not...

My husband is in the dex study too and he doesn't have issues yet with his breathing. He has has been on it since August 2011. Yes they tell us that he will be able to have the real drug in October and we won't find out till next January 2013 if he has been taking the placebo or the real drug...

Hi Willow, Do you not have a branch of the ALS Society of Canada near you? We live in BC and the ALS Society of BC is a great organization. They have an equipment loan program that is wonderful. My husband was diagnosed Dec 2010 with ALS and they have provided us with all the equipment we need...