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    Sleep Solutions

    My mom could not stand the Bipap (but used it), she was on oxygen as much as we could get her to do it. About 2 weeks prior to her passing, she was on it all the time. 4 days before she passed away, she had enough, no more bipap, no more oxygen, no more cough assist, she just pushed it all...
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    My Mom was just diagnosed with ALS

    I feel like I have left you all. I am sorry. I have been on and off here, but not posting. Tonight I sat and read my thread on my mom. I still cannot believe she is gone and went through this. I feel like during this thread many of you were so kind to me with words of encouragement and some...
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    I am not coping very well

    Hi Kim, I know all too well what you are going through. My mom was diagnosed in July 2012 and she passed away in November 2012. She was 63. I too worked fulltime, live 2 hours away from her. I was fortunate to be able to see her every weekend and a day or two during the weeks. It was very...
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    medication clogging feeding tube?

    My mom was on a peg as well. Certain medications we had to dilute in water to give to her by tube. Be sure to check with the physician, they may be able to provide them in liquid format. We always flushed the tube with water afterwards and each week ran coke cola through it.
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    How is your mom doing? I am sorry to hear she is not doing well. Our Hospice team up here was...

    How is your mom doing? I am sorry to hear she is not doing well. Our Hospice team up here was wonderful to my mom and to our family. They were always there for us 24/7, that was a huge comfort especially towards the end they helped guide us to make mom as comfortable as possible. I'll be...
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    Hi Kim, I'm glad your dad is coming home. It is so hard not living close to them. I struggled...

    Hi Kim, I'm glad your dad is coming home. It is so hard not living close to them. I struggled with that so much for my mom. I am so grateful my boss let me leave work as often as he did so I could go see her during the week. I am glad to hear he's using his bi-pap. That scared my mom so...
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    mom diagnosed a few days ago

    Iwise, my mom just passed away 2 weeks ago today from ALS. She was diagnosed on 8/1/12 and then on 8/21/12 at Uof Michigan. I too was looking for answers, research, cures, etc. Anything possible to take away my moms fear that she was limited here with us. Hard it is was to not get caught up...
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    My Mom was just diagnosed with ALS

    Thank you for all your kind words. I am back home now. As you all warned to be prepared and plans things now, we didn't. We thought we had more time. I am so bitter against ALS I just cannot stand it. I cannot understand why we get it. My mom had a shunt put in her head about 13 yrs ago to...
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    My Mom was just diagnosed with ALS

    To everyone who has been there for me, my mom, my family, we thank you for all of your support. My mom passed away Friday, November 16th at 12:15 p.m. peacefully in my dad's arms surrounded by her children, her sister, and her best friend. She started failing a week ago... we were at her side...
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    My Mom was just diagnosed with ALS

    Mom is scared. She is trying her best to fight this dreadful disease. But she is still loosing weight, hardly eatign solid food now and is wondering why she wants to sleep all the time? She wonders, as do I, what happens next?
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