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  1. R

    He is free at last

    My beloved husband passed away around 9:30 pm yesterday. We had a good weekend with both our kids visiting. Wedneesday was an otherwise normal day for him. He was in his favorite chair and I was getting him ready for bed when he passed.
  2. R

    Jane Hawking interview

    Jane hawking talks about the movie and its portrayal of their life. Jane Hawking: ?There were four of us in our marriage? | Life and style | The Guardian
  3. R

    What do you say?

    Every now and then we get a call from a long lost friend/acquaintance who has just heard about my husbands illness, and they have only a vague idea. So I patiently explain and spell the name, it is ALS aka Lou Gehrig's aka MND, etc. Sometimes I will bring up Stephen Hawking's name. Then they...
    • rosec
    • Thread
    • als driving friend hawking mnd stephen hawking
    • Replies: 25
    • Forum: Rants and raves
  4. R

    Middle of the night breathing problems

    Last night my PALS woke me up and wanted to sit up be cause he said he felt like he couldn't breathe. So I had to get the hoyer lift and transfer him out of bed and into a chair. After using the cough machine a few times to clear up, he felt better, and I gave him some Ibuprofen before he went...
    • rosec
    • Thread
    • acetaminophen back bed bipap breathing breathing problems chair hospice hoyer hoyer lift lift night pain peg planning problem problems sleep transfer trilogy wanted
    • Replies: 6
    • Forum: Current caregivers
  5. R

    Hospice with Peg tube and BiPAP

    If your PALS is in hospice, are they ok with the PALS continuing to use his/her BiPAP and continue with the tube feeding? We have started thinking about hospice, but heard that some of them do not allow those. I don't think we will enter hospice under those circumstances.
  6. R

    How often do you/your PALS visit his/her neurologist/ALS clinic?

    My PALS was diagnosed almost 3 years ago. He got his feeding tube about 18 months ago. Initially he was asked to to come to the clinic once every 3 months. When we go, his vitals are taken, his breathing (FVC ?) is measured, then his neurologist or the RN (a very fine RN) checks his arm/leg...
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