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    Bibrachial amyotrophy. can develop into ALS

    His ALS specialist said it would develop into traditional ALS. In general, Bibrachial typically takes longer to get to that stage, but in his case, he wasn't as fortunate. He does not require oxygen at this point, but can not breathe effectively without the help of the CPap. He can barely move...
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    Bibrachial amyotrophy. can develop into ALS

    I wish I had read the replies before I posted the last response. It does affect breathing, it can affect the bulbar region and it does turn into full blown ALS. My Dad is completely dependent on the Trilogy, witch is a C-pap machine that can also be used as a ventilator. I too had a hard time...
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    Bibrachial amyotrophy. can develop into ALS

    I'm very sorry for the news you guys just received. My Dad was diagnosed 3 years ago with Bibrachial. It started in the left hand and over the course of a year, he lost complete use of his left hand/arm. Then it only took six months to take the other. It then moved to his chest, skipping his...
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    Does anyone know where I can find free counseling services in my area?

    All religious men/women leaders offer counselling. It is private and one-on-one. Also, there are counselling facilities that will charge on a sliding scale according to what you make. It could cost as little as $10 to $20, if that works for you. I received free counselling years ago at a...
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    Newbie looking for advise when helping someone in denial

    Thanks to all of you! I want to support him in, educate him and spend as much time with him as I can. The unfortunate thing is that we live in separate states. Mrs. Pie, we went to an ALS clinic and this was the second opinion. I wish there was a support group in his area, but there is not. I...
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    Newbie looking for advise when helping someone in denial

    I am a trained and licensed caregiver, but it is different when it is one of your parents. The second opinion by a specialist is very fresh and I anticipated denial, but I don't think I was ready to hear the amount of irrational thoughts and decisions from this person. They are believing...
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