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  1. S

    From a teenage daughter author's point of view

    Your messages bring tears to my eyes. You are right-- my dad and anyone else affected by ALS has not lost the battle, they have won it. The impact they had on our lives and the lives of all others they knew is beyond words. Thank you.
  2. S

    Just seeing this message, four years later. Please check out my latest post. Thank you for being...

    Just seeing this message, four years later. Please check out my latest post. Thank you for being so caring.
  3. S

    From a teenage daughter author's point of view

    Hi everyone. My name is Sarah, and I am nineteen years old. The last time I posted on here was about three years ago. My dad was diagnosed with ALS in June 2012, now three years ago. I found out on July 15th, 2012. I found out because I accidentally found a bottle of Rilutek, and I googled what...
  4. S

    Please help

    Thank you Neil for reaching out to me. I'm sorry I haven't responded, we just got back from Alaska last night. Hopefully I'll give you a call tomorrow sometime. My parents are actually going down to Boston for an appointment for my dad my mom just told me. When I do call you though I need it to...
  5. S

    Please help

    One of the hardest parts for me about this whole thing is that my dad and I do not exactly have the best relationship. and it has nothing to do with him. it is all me. its probably common among all teenage girls to think their dad is incredibly annoying with everything he says and does, and that...
  6. S

    Please help

    I first found out when i saw my dad's medication. my mom told me to go look for something in her room, but i couldn't find it. so as i was searching for it (a book) i went into my dads nightstand and saw a bottle of pills- and it said it was rilutek. i was curious so i googled what it was- and...
  7. S

    Please help

    Oh and for those of you wondering: I first found out about the ALS when i saw my dad taking medication and i later saw it to be rilutek. i later googled it, and i found out what it meant. i had a complete breakdown- probably one of the worst days of my life. soon after i saw an email that my mom...
  8. S

    Please help

    Oh and I know it is ALS because I saw my dad taking medicine and saw it was rilutek. And that night I googled it and realized what it meant and I had a complete breakdown. It was probably the worst day of my life so far. And then my mom left her email open one day and it said that the doctor in...
  9. S

    Please help

    Thank you everyone for your kind thoughts and support. It helped a bit to read them. I know I really do need to tell my parents I know, but I just have no idea how to bring it up. Some days I am fine, and others I am just overwhelmed with sadness. Especially when things are happy (like tonight...
  10. S

    Please help

    Hi everyone. so i am a 15 year old girl. and i just found out my dad has ALS. but my parents don't know that i know. i accidentally saw all the information. and I'm on the verge of a complete mental break down. I'm so overwhelmed with emotions. incredibly scared and sad about what is going to...
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