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DO I HAVE ALS ? The two most common questions ask by new suspecting ALS patients are, do I have ALS and the other is what should I do? Do I have ALS is a difficult question to answer. One visit to your neurologist will not be conclusive. He will tap on your knee, push down on your elbows...

Hi- i mentioned that i was having my casket built by an amish acquience $300.00. Also, we all know you can't it with you, but you also can't die your way out of debt. Any outstanding bills are paid during probate, spouse or heirs can be resposible. Check your state laws, legal zoom dot com...

Not sure, if i have anyside effects it is fatigue, tired all time. My guess is placebo.

I am currently dealing with my own arrangements. So a few suggestions. Alot depends on state laws. In indiana real property has to be in both names for spouse to inheret 100%. All bank and investments should be in both names and/or spouse named as heir. A big part of funeral costs is the...

Pam- i am sorry to hear that larry didn't get in study. I am in week 3, my guess is i am on the placebo. I am no longer walking but can still transfer. I was also in ceftriaxone and actually taking the drug. Progression still continued. Based on week 0 results, i am trying to finf...

I think there is an upcoming fda approval request? Does anybody have info?

Hi- I am in week 2 of the trial, 3 pills/day. During week 0, I sensed better balance and the swelling in my feet definitely improved. I have not noticed any improvement since week 0. However, I have been doing alot more strectching. It feels good and I think my range of motion is slightly...

Hello- I have just started week 1 of the study, that is the week you are randomized, 50/50 chance of placebo. Your first visit can be lengthy, muscle, respitory an blood draws to see if you qualify. Second visit is after the blood and urine analysis is OK. If it is, you start week 0. You...

New drug study. I have not posted anything for several months. I participated in the failed ceftrixione study. Now I am in the clinical trial for CY 4026. This is a new drug testing muscle strength. I qualified for the study and am in "Week 0". During week 0 everyone receives the drug, a...

I have been in the ceftriaxone trial for 16 months. I have had galbladder sludge so i beleive i am on the drug. Within the first two weeks my cramping almost stopped. I still get an occaisional cramp but the severity and duration are much less. The disease progression has not stopped as i...