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Chris...I just wrote a very long conversation and somehow it got lost and am too tired to write it all again...but I want you to know that Tom died last on Oct 3rd..he was in the hospital and I was not prepared for it at all...thought they would tweek his meds and send him home...his sodium...

Dearest Pam...I am so sorry for your loss...it sounds like your husband was an angel who was here for many reasons! My heart goes out to you and your family... Adrienne

I just got home from hospital...been there all day...this morning I could not wake tom up, called dr's office they said to call 911...too tired to write all the details of that...anyway his sodium level was very low, which can cause much confusion in the brain, oxygen levels low...they admitted...

The last couple of days have been awful..it's like my husband is losing or has lost his mind...I know it must be the opiates that are causing this, not the ALS..has barely eaten anything..what he says when he talks makes little sense..There are two nurses coming thursday and I will be anxious to...

thank you chris..it is now almost noon...my husband got up again at 5am for more pain pills and he is out of it again....which means when i try and feed him he will fall asleep with food in his mouth..i weighed him yesterday and he is 137..and he is over 6 ft tall...i just don't understand why...

No, he is not drinking...and they did try the patch and that made his condition much worse...he was falling and could barely make a sentence. I wish there were a way that you could lay your hand on someone and be able to feel exactly the pain they are feeling, maybe that would make me more...

It is 420am..am wide awake...my husband managed to get himself out of bed into the living room and take more drugs...however he couldn't get himself back into bedroom and had to call me...he is so out of it mentally...and it is not the als it's the drugs that he continues to take that make him...

You aren't making me feel witchy, it's me when I listen to myself get so angry with my husband...yes, it is a horrible disease...In the last few days I have felt a great relief hearing back from you and everyone adrienne

what kind of pain are you feeling? your husband sounds like me talking to my husband!

Oh Kim....I am so sorry for you and can't tell you how much I appreciate you sharing this...are you still dealing with the medication or have you stopped? Has your diagnosis been MS or ALS? My husband (at this point) would never be able to sit down and write and admit what you did..I don't...