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Thought it would be interesting to see if there are patterns of fvc, bi-pap and mobility. What is your fvc% , hours/24 on bi-pap and amount of mobility? My fvc is 57%, 14/24 hours on bi-pap, mobility-able to walk ok but pressure in rib cage and shortness of breath when standing or exerting...

Hi, The Dr. just told me that based on my breathing 'scores' I shouldn't be working so hard to breathe. She is going to have me tested to see if something else is going on too. That would be good if there was something else intesifying the shortness of breath that could be alleviated. What...

Hi, I successfully flew with my bi-pap! We figured it out after hours and hours of going round in circles with trying to figure out which battery. The battery route was confusing and ultra cumbersome (almost the size of a car battery!). Hopefully this will save you time. Here are the steps...

I am still speaking but softly and I slur such that people can often not understand me. I use an amplifier. I should have started earlier recording my voice but did not...so...no time like the present. Anyone have recommendations of where to start - it seems daunting. Plus I use a Macintosh...

Hi, I am going to see my parents in July and it is about a 5 hour plane ride. The last time I was on a plane I had difficulty breathing the last hour - shortness of breath, using auxillary muscles. I assume it is the lack of oxygen in the cabin. I got relief when I exited the plane. I get the...

Hi, Can I get your input and exerience? I have a local Gastro Dr. set up to do a PEG tube on Monday. I heard today from a different source that with impaired breathing there could be risk of pneumonia. The Gastro Dr. did say he wants to use a different drug because of my breathing but he...