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right thumb It started in my right thumb too. GP diagnosed carpal tunnell. Got worse, went to neurologist who said not carpal tunnel because the atrophy was on the top of my hand too (carpal tunnell only atrophys the thumb pad on the palm he said). Tests, tests, tests,watch and observe for a...

purple feet My feet get kind of purple when they are cold-like when I am barefoot outside on concrete. I guess they get pretty purple as my kids have found it quite entertaining to check out mom's purple feet. I haven't thought much of it as it doesn't happen that often-or I don't notice it...

Thought it would be interesting to see if there are patterns of fvc, bi-pap and mobility. What is your fvc% , hours/24 on bi-pap and amount of mobility? My fvc is 57%, 14/24 hours on bi-pap, mobility-able to walk ok but pressure in rib cage and shortness of breath when standing or exerting...

what is your fvc and bi-pap hours? That is really intersting to hear- thank you for responding. at 30% do you have the breath to exert yourself- walk or exercise..? I am tense, I am sure that contributes. I think it is more than that too...allergies or lung infection are possibles, I will...

Hi, The Dr. just told me that based on my breathing 'scores' I shouldn't be working so hard to breathe. She is going to have me tested to see if something else is going on too. That would be good if there was something else intesifying the shortness of breath that could be alleviated. What...

If you don't have an Amex card Don't fret that you don't have an Amex card and can't vote- pass an email with the webaddress- www.membersproject.com - along to your friends and family! That could make a huge difference and get way more than your one vote. Hurry! I am sure the way the top...

Use this link to vote The link in the email above doesn't work- not sure why- the link on a previous posting worked...anyway type in www.membersproject.com into your broowser. Here is what I did that I request we each do: I sent the address/ link to everyone in my address book asking...

Age I am 50. Symptoms started at 47.

Hi, I successfully flew with my bi-pap! We figured it out after hours and hours of going round in circles with trying to figure out which battery. The battery route was confusing and ultra cumbersome (almost the size of a car battery!). Hopefully this will save you time. Here are the steps...

Instant message to talk to my mom Thank you for all the great ways to augment speech. Here is a simple way I can "talk" to my mom on the phone. It requires high speed internet (no dial up) and Instant Message. My mom and I are on the phone (I put her on speaker). She talks and I respond...