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  1. L

    PK Protocol

    Thank you all for your taking time to respond. I guess it is human nature to cling to possibilities, beating the odds and being the exception - even in full view of certain realities. I know I am just not ready to accept the future of ALS in our family. I am gaining insight and support from...
  2. L

    Ever wish ...

    I am not the primary caregiver for my sister, and I can only imagine what it is like for my brother-in-law and her kids that are close by. My beautiful sister has progressed so rapidly that we are all still trying to reconcile how much she can no longer do and how much everyone else must do for...
  3. L

    Mom passed into Gods hands

    Blessings to all who go down this road. Comrades in ALS and peace when it is time. My heart goes out to you over the loss of your Mom.
  4. L

    PK Protocol

    New to the ALS world with my sister being diagnosed 5/2012. She is undergoing treatment called the PK Protocol (named after the researcher Patricia Kane). Has anyone out there had any experience with this protocol? Sister previously had Lyme in 2009 and when these symptoms began last fall...
  5. L

    need caregiver advice

    My sister was diagnosed with ALS just before Mother's Day 2012 so we are all new at this although she has been exhibiting progressing symptoms since last fall. Drs. thought it was recurring Lyme. Her husband is her primary caregiver and family members were filling in mornings and other times...
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