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  1. R

    FALS "what a *****"

    I have posted on here a while ago concerning my some issues I was dealing with. Since that date I changed a lot of things about my life and how to understand me and my path forward........ A little background here about me and my past post....... I have been living with the nightmare of FALS for...
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    FALS knocking at my door Repost

    Some days I feel great...... Some days I feel beat down. I had a good workout today but now right leg is twitching like mad! I am on the verge of getting a cramp. How long do people have sympoms of ALS and not know its ALS? I am sure everyone who has been diagnosed can go back and think about...
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    FALS knocking at my door Repost

    Someone asked me how old I was last week and I told them in 36 years I will be 72.......... I got the look from them I wanted, it was funny
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    FALS knocking at my door Repost

    Well I went to the Nuero a couple weeks ago. We did the strength tests and he wacked me with his mini rubber mallet for what seems like 2 hours. All the test were pretty good. My left hand was not as strong as my right but I am right handed and it's not all that uncommon. While he was doing the...
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    FALS knocking at my door Repost

    Yes my Dad had ALS and so did his father. ALS also started in my fathers arm.
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    FALS knocking at my door Repost

    Well, I have my appointment with the Nuero this week. All my initail blood test the GP ordered came back normal. I am praying I have a pinched nerve in my neck. I will tune in and write in here again if it's anything worth sharing. Thanks for reading
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    FALS knocking at my door Repost

    I have a family tree documenting ALS going back 5 generations. 25 of my family members have passed with ALS. I was going to get the genic testing done but with out my fathers DNA to look for the sod1 gene there couldn't be a 100 % confirmation I didn't have the disease. If something has changed...
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    FALS knocking at my door Repost

    Great deal? i don't know much about the VA, I guess I need to put more effort in that area. ?Thank you
  9. R

    FALS knocking at my door Repost

    Just one step at a time for now. All the tests are coming. I will use the VA at some point if it seems like my medical provider is not doing all they can for me. This is all new to me, thanks for any advice anyone offers to me. The bloodwork will taken on Wensday I don't expect any results until...
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    FALS knocking at my door Repost

    Well I went into the doctor. I showed her my arm and we did a series of reaction test. It was pretty much what I expected and I now have an appointment with a Nuero in a few weeks. She wasn't an ALS specailist and I think I may have been the first person in her career that she has seen with ALS...
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