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Hello everyone, having passed 4 years since onset, and two years with mechanical ventilation and almost completely paralyzed, I've had some strange occurrences . Firstly, both arms including hands and fingers, are paralyzed, except for my left thumb, it moves freely. But In January, of this...

I had my first trip to the ER due to ALS. I slept in my power chair at my computer Sunday night, December 21....this might sound strange, but I became trapped in my Power Wheelchair. My left arm slid off the arm of the chair. Since that arm is so weak I couldn't pull it back up. So I shifted...

I received this site through Twitter yesterday, all things considered, it is interesting. New hope for treating ALS | Harvard Gazette

This is a program that will let you reprogram mouse keys... needed something because i kept clicking right key with left. X-Mouse Button Control - Free download and software reviews - CNET Download.com

I was wondering what, if anything, I can do to help alleviate the pain when I try and move my arm behind me, etc. It feels just like tendinitis, which I have had before. My Chiropractor gets it feeling good for a few hours but then the pain is back. It's not a constant pain, just when reaching...

Hi all...I have a simple question. How do you slide the external bumper on the feeding tube? I know it's not attached but it's very snug. I tried a little soap while showering but that didn't seem to do any good. Of course then my hands were slippery with soap too. I just want to be able to...

Recently I downloaded the latest version of the DP. There are only 5 mandatory supplements now compared with about 20 when I first looked it months ago. I have been taking some of the stuff for months, but just this week started the whole new regimen. I take all meds and supplements through my...

In the short time I have been a member of this forum, just over a year, I have noticed quite a change. At first people would give good advice and try and be as helpful as possible...(Those people are still on here but less of them). Lately I've seen the trend of trying to convince people what...

Last month my Doctor started having me wean off amitriptyline. One reason being she doesn't like some of it's side effects. Another is because she put me on Nuedexta and there are some slight interactions. Anyway, I went from 50 mg to 25 mg and am now off of it. I am not sleeping nearly as well...

Quite simply, if a persons breathing is at all compromised at lower altitudes, then wouldn't higher altitudes make it worse? We were recently vacationing in the Rocky Mountains. Spent two days in Bozeman, MT (4,820 feet) and another two days in Colorado Springs (6,035 feet). We also traveled...