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Ny brother fell on the pavement outside a pool at a resort in the Dominican Republic today while on a family vacation. He went down hard, hitting his head, scraping up a leg, injuring a finger (broken? sprained?) and making a problematic shoulder even worse. His feet had been getting weak from...

A friend sent me this story about a possible advancement in treating ALS. Basically, a new study found that BMMA, an amino acid found in brains of people with ALS, mimics this other amino acid called L-serine. When BMMA gets into the protein of cells, it messes them up, and tangled proteins...

This is an initiative started by Steve Gleason, the former New Orleans Patriots player. He recruited a bunch of NFL players to make a public service announcement about the devastating effects of ALS. The ad will start airing Monday, right after Superbowl. It's perfect timing, since people's...

A wonderfully inspiring story about former New Orleans Patriots' player Steve Gleason's determination to fight ALS: 'No White Flags': Gleason builds movement against ALS

I haven't been posting here much lately, just dropping in and reading from time to time. There are two reasons for that. One, my brother is thankfully still in the early stages of ALS, so I feel I don't have a whole lot to contribute in terms of giving input or advice about particular aspects of...

Just watched a TED talk about a device that allowed an artist paralyzed by ALS to draw for the first time in seven years. Made my heart happy to watch it. Mick Ebeling: The invention that unlocked a locked-in artist | Video on TED.com

Happy Friday, everyone! I hope you all find a reason to smile today.

I just heard about the organization Project A.L.S., whose mission is "to recruit the world’s best research scientists and clinicians to work together toward an understanding of and the first effective treatments for ALS (amyotrophic lateral sclerosis), also known as Lou Gehrig’s disease." The...

Feeling frustrated and upset and just need to vent. In short, my family has been talking with my brother about him coming to the west coast and spending Christmas with us. It would mean the world to my mom and lf course i want him to come as well. He has lived on the east coast for 18 years and...

It's based on a book called "You're Not You," which I hadn't heard of (anyone read it?) Big win for ALS awareness to have a huge star like Hilary Swank involved. George C. Wolfe to Direct YOU’RE NOT YOU Starring Hilary Swank