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  1. Compass Rose

    Ottawagirl has left us

    My heart breaks at this news. Elaine was diagnosed a month before my brother and was the first person I communicated with here during those terrible weeks after his diagnosis. She was so incredibly supportive, wise and generous. She was so kind to my brother, and to so many other people here...
  2. Compass Rose

    Message from ottawagirl

    I checked in here tonight to see if there were any posts from or about Elaine. She and my brother were diagnosed about a month apart and she went out of her way to be a friend to him, and I know how amazingly supportive and generous she's been here. She is such a special person. I hope she's...
  3. Compass Rose

    PALS first fall - how to avoid more?

    Thank you all for the input. It sounds like a rolling walker with a seat might be a good next option. Kim, I've never heard of a gait belt but will look into that. It turns out my brother has a mild concussion, but fortunately no damage. He's taking a few days off work and is at home resting...
  4. Compass Rose

    PALS first fall - how to avoid more?

    Ny brother fell on the pavement outside a pool at a resort in the Dominican Republic today while on a family vacation. He went down hard, hitting his head, scraping up a leg, injuring a finger (broken? sprained?) and making a problematic shoulder even worse. His feet had been getting weak from...
  5. Compass Rose

    Ottawa Girl Deleted Thread Because it was a direct apology to her

    I was thinking the exact same thing while reading this - you really are a beautiful person, Elaine. Your wisdom and grace always humbles me. The world needs more people like you in it.
  6. Compass Rose

    My wife surprised me with a petting zoo for my birthday

    What a sweet thing for your wife to do! I'm glad you had such a special day. Thanks for sharing your photos.
  7. Compass Rose

    Possible ALS treatment breakthrough

    A friend sent me this story about a possible advancement in treating ALS. Basically, a new study found that BMMA, an amino acid found in brains of people with ALS, mimics this other amino acid called L-serine. When BMMA gets into the protein of cells, it messes them up, and tangled proteins...
  8. Compass Rose

    where is everybody?

    How are you, Elaine? I've been thinking about you lately and wondering how you're doing.
  9. Compass Rose

    where is everybody?

    I still check in here every couple of weeks, but have stayed away because my PALS (brother) is doing relatively well and I want to focus on that and pretend this isn't happening for as long as I can. I'm sure there will be a time when I visit here a lot more often.
  10. Compass Rose

    365 days ago

    Elaine, you are such a light. If there's a silver lining to this disease, it's meeting people like you. You give so much here, through your grace, your wisdom and your wonderful sense of humor. If I could give you a big hug, I would. You are a extraordinary person, and I'm grateful to have met...
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