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    No longer wants bi pap

    We struggled with that for about 6 months before we got the trach, and let me tell you it was the best thing. Then he lived with a trach, peg tube and superpubic catheter and ventilator for another three years. Which he could not have done without the trach and vent. More importantly these...
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    Recent loss

    Hi there we recently lost our loved one to ALS. Please visit my profile to view the short list of things we have for sale / donate. Thank you for your time.
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    Peg tube disaster

    Hi Chris, the peg tube will become your friend no worries there. That being said, i'm not sure what kind of formula you are using. If it is Osmalite, Perative or something similar you will have to be very mindful of your flushing since these formulas basically turn into cement when they dry. So...
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    Dynavox & Hill-Rom for sale

    Sorry 1000 characters wasn't enough space for this post. Anyways my father lost his battle with ALS on fathers day (2 days ago) and now we find ourselves with an abundance of equipment / supplies. We (mom and I) have spent literally every waking moment for the last 3 years caring for him. We are...
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    Eyegaze

    Can he blink? You may / will need to start asking questions like......Blink if, you need suctioning or whatever....blink if .......That worked for us for a long time, and as someone else said if your wanting to go with an eye gaze then the sooner the better.
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    Dynavox & Hill-Rom for sale

    Here's the short list: (1) Hill-Rom TotalCare Spo2rt bed with percussion/vibration, low air loss & rotation modules (3y/o) (1) Hill-rom the VEST airway clearance system (6 months old with less then 4 hours use) (1) Dynavox Vmax+ with Eyemax & stand (3 months with less then 10 hours use) (1)...
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    We recently lost our loved one to ALS after a six year battle. We spent every waking hour for...

    We recently lost our loved one to ALS after a six year battle. We spent every waking hour for the last three years caring for him and as a result have various pieces equipment & and supplies & will come in handy for anyone attempting home care. Anyone interested can contact me here...
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