Haven't been on here lately, so sad to see how many PALS have pasted away. Sad to hear some PALS are getting worse. I would sometimes get a little envious reading that you still had your PALS alive. But when I read your stories, it breaks my heart all over again. I am so sorry you all have to...
I am mad my dad is not here to celecbrate his wedding anniversary with my mom. I am mad I can't call and wish you "happy anniversary". I am mad that I am not going to hear about where you went to eat. I am mad I won't hear about what you ate. I am mad. I'm so mad I can't stop crying. I guess I...
My dad passed away yesterday from Bulbar ALS. He stayed alive long enough for my family to make the trip to say goodbye. The day after I left he passed. I am sad but I feel a sense of calm. I used to read these post before he passed. After seeing my dad now I know why people write "Freed from...
I said goodbye last night and flew back home. Dad entered hospice right after I left. This morning his quietly passed with my mom by his side. My dad held on so I could visit with my family. I am grateful I was able to say goodbye. Amazed my dad would hold on each day for me. Begged him to wait...
My dad who has Bulbar ASL should been released from the hospital this week. He was just diagnosed this week. My mom is a mess. She feels the weight of the world on her shoulders. I told her once she gets home & talks to others in the ALS community she won't feel so alone because they...
My dad was just diagnosed with Bulbar ALS. It's seems to be progressing fast. His speech is faint. On a PEG already. Just put on Bi-Pap. Since he was just diagnosed this week at the Mayo Clinic his emotions are all over this place. I don't want to see him suffer. I look for advise and guidance...