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I don't know what the diaphragm pacer is? He pretty much does whatever his dr at Columbia recommends, nothing more nothing less. I am trying to stay one step ahead do I know what to expect...

Hi, I had posted several times awhile back about my father in law and his "possible" diagnosed. He now has an official diagnosis confirmed finally by his last emg. He has bulbar onset. In August his Fvc was 81% which decreased to 50% by January. He has since gotten a peg tube (although isnt...

Thanks to all for the advice. I am going to encourage him to call the clinic on monday. I hope they recommend those things for him. It was so scary last night listening to him cough. He did go see his gp this morning who told him to take musinex as well. Michelle

My father in law was diagnosed with ALS last month after symptoms for over a year. I was concerned about his eating and choking but the specialists at ALS clinic didn't think he needed peg tube yet. Then we were concerned with his breathing but his levels are still good so they didn't feel he...

Your brother should find an ALS clinic... Where do you live? My father in law hasn't been diagnosed yet but his neuro treats him like he has. He goes to the ALS clinic at Columbia in NYC and he meets with his full team (pulmonary, speech, neuro, ...etc) every three months to monitor his progression.

That all makes a lot of sense. Right now his weight is good and he is eating well. We have discussed the possibility of the peg tube when he is ready (which he is not). I will definately tell him about the effort level at his next breathing test...also, he is traveling by airplane at the end of...

Thank you everyone for your replies. I appreciate the wealth of knowledge you share...although it would be better if none of us had a need for all of this. His last 2 EMG tests were inconclusive. I think he will have another at his appt in November. I was very upset last time I posted about the...

Hi all, I posted a while back about my father in law. He has not been diagnosed yet but it certainly seems imminent. He has bulbar onset symptoms. He returns to ALS clinic at Columbia at the end of the month. He learned some great strategies for eating and drinking from the clinic and the...

Not all of the colgate products. I switched our family to a different colgate that doesnt have it! I forget what it is called.

Oops...colgate total I meant!