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  1. T

    hand atrophy help

    Hi All, Ok really need some advice here. If I have hand atrophy on the palm side I can not tell because it must be symmetrical. However on the top side of my hand between my thumb and index finger my skin is extremely wrinkled at 35 I look like a 80 year old. Yes at times gripping papers...
  2. T

    Update on me

    First off I don't post much do to the fact that I would probably be too negative and don't need to put that on all of you. You guys/gals are amazing, very much admire your courage! I was told about 3 months ago from a Stanford Neuro who specialized in ALS that he is 99.9% sure I don't have...
  3. T

    phlegm issues

    Anyone with Bulbar type symptoms have something simialr to me: IF i force myself to breath through my nose and breath hard I kind of snort, a feeling like the top of my throat is swollen or closed. My nose is clear but i have constant post nasal drip and have a really really tough time...
  4. T

    Went to third NEURO

    I was referred to Stanford at my request from what is conisdered a really good neuro. He didn't feel it was als, nor does the Neruo from stanford. He feels with all my tests I've had and the symptoms that ALS isn't even in the picture. He said that they can be 99.9% but never 100. He feels...
  5. T

    Questions regarding progression

    I have mentioned my symptoms before but I'll list once more for the puprose of this question. My first symptom was a painfull left shoulder that made usage of my thumb tough. That direct symptom has gone away. Later I became extremely fatigued, tired & weak all over but most notably in both...
  6. T

    Question for Jamie

    Hi Jamie, You mentioned in a prior post with a link provided that noise on the emg after the initial insertion was not bad. I thought it was but read the information on the link and came away with your thoughts. However upon looking further it says that there should be no noise(acitivity)...
  7. T

    Stanford

    Hi all, Anyone ever go to Stanford for their testing? I was wondering if anybody has any feedback on whether they are considered good or bad. I have an appt in the middle of Oct. Has anyone had their als symptoms jump around before settling in? All of this started with my left shoulder...
  8. T

    wrist pain

    I just woke up this morning and have such a pain in my left wrist where i cant bend my hand up. My fingers all work fine but its just my wrist that really really hurts. Is this another symptom of als I am showing now? Thanks, Tom R
  9. T

    thumbs etc

    I have pain and off and on weakness around my thumbs on my right hand. This has been going on for about 1 month. Now I am getting this same thing on the other hand. I thought in ALS that it pretty much destroys or ruins a limb and then migrates, is that not true? At this rate my whole body...
  10. T

    spascitity

    Once you have this in a given region such as my thumb, does it go away? Also would pain on the top of your thumb knuckle by your wrist be a common area to have pain related to als? Thanks, Tom R
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