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My ALS started with arm/leg twitching and Charles horse spasms in legs probably a few years before arm weakness. Everyone is different. Unfortunately, I think ALS affects more young people than was previously thought, maybe registry will tell us more.

Deb, check with the ALS clinic about drug trial, tirasemtiv may interest you as it increases muscle strength. Susan

Great PA, read more: Dysautonomia - Wikipedia, the free encyclopedia

Another 1 bites the dust! Gotta keep searching !