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my husband went from a 44 to 32 in one year he has peg tube and believe me its no problem and he is getting the proper nutrients as well as some proper food sometimes,,,,i do hope you hubby has the tube as its there to help him get the proper stuff he needs to keep him as well as pos good luck...

hi there thankyou so much for your kind words janette xxxxxxxxx

hi my name is janette my husband was diagnosed with pbp march 2012 his speech is a bit ok sometimes he is on rilutek 2 months now just looking for chat and support very scared but taking every day as it comes,,,he is very mobile but bothered with saliva build up he has a peg tube in...