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Hope you have a good Easter as well. I am hanging in there on deanna's Protocol. Not getting any worse, so I like to think it is working.

I have a barely used wheelchair, a shower seat, a walker with a seat and a toilet chair. I live in Dallas, TX. If anyone can use these items please pm me. Jamiem

I have a barely used wheelchair, a shower seat and a toilet seat if anyone needs them. I live outside Dallas, TX

Hey Uptown, I am living outside the metroplex and I go to Texas Neurology Associates. They have ALS clinic two to four times a month. I am planning on going to the first meeting in January. Where in Dallas are you getting your treatment? Maybe you could get involved in the clinic. I would...

Greg, I am Jamie. I have Bulbar ALS and I started the **scam words removed** yesterday. I will try to keep you posted. Check it out. Google **scam words removed** . I am so sorry you have joined the forum under these circumstances. Keep a positive attitude. It will go a long way for you!

Wild to hear from you today. I am on the list for peg surgery later today at Baylor in Dallas. How are you and the kids?

Use the Bipap. I went to my PCP and was put on oxygen. When I went to ALS Clnic I was told the oxygen was making me dependent and would end me up on a vent. I have to try to breath on my own. For a week I thought I would die without the oxygen but finally the bipap is helping again and I am...

TOTO I don't come to the forums much any more, but your post today touched my heart. Your wisdom and kindness has been a mainstay for this forum since the day I joined. I pray your circumstances improve. You should automatically be approved for medicare in the U.S. with an ALS diagnosis...

Yep, and it qualified me for oxygen. But damn near killed me before I went to see.

In December I found myself simply to tired to finish my sentences. I am bulbar.