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  1. amyst

    I miss my shoes

    My life is changing so much. The major things I seem to block out emotionally easier. That probably isn't a good thing. Often i feel the need to cry, but the tears won't come. Anyway, back to my shoes. I've been going through things and getting rid of as much as possible in preperation to move...
  2. amyst

    Am I thinking too far ahead? looking for replies from a PALS and CALS perspective...

    I have read here many times to stay ahead of your needs. I have read about PWCs a lot because I started with right foot drop and that leg is progressing, moving up above my knee. I use an AFO on that leg but it gets weak fast and it' starting in my low left leg. I have fallen once. I'm very...
  3. amyst

    update on my diagnosis

    Hi, I posted last week about best als clinics. Well, last Tuesday I got a call from Vanderbilt telling me I can come in Thursdy to see Dr. Donofrio. After feeling frustrated that I had to wait weeks, now I wasn't sure if I was ready in two days. After a frantic afternoon tuesday planning with...
  4. amyst

    best als clinic for definite diagnosis?

    Hello to everyone. This is my first post so I hope it's in the right place. I will try to keep it simple. I have been given a diagnosis of probable ALS by a neurologist speciaizing in neuromuscular. I have dropfoot, muscle cramping, weakness and twitching. He performed an extensive emg that...
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