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  1. Syekick

    Starting year 3 maybe 4...

    I began having problems with my left foot March 2011 and initial diagnosis ran that it was related to diabetes type II, which I had left behind In Sept 2003 after losing 200lbs. I thought the two neuros I saw from June 2011 till March 2012 were wrong about that as it didn't make sense. I...
    • Syekick
    • Thread
    • als balance bipap brain breathing children diabetes diagnosis diaphram disability emg fingers foot foot drop free health hope insurance love problems pwc sleep worry wrong
    • Replies: 11
    • Forum: People with ALS (PALS)
  2. Syekick

    HUMOR - My new neurosurgeon!

    With plenty of time to sit around and think, my mind wandered into something I consider funny. Not real, nor serious. Just a funny story I put together from all the possibilities of this odd plot. I hope you enjoy it too. A new ALS solution possibility! I’ve been looking on Google...
    • Syekick
    • Thread
    • age als back blog brain death early family fundraising hope lead life money power research story support surgery transfer vacation young
    • Replies: 4
    • Forum: Comedy, humour and jokes
  3. Syekick

    Hiccups

    One good thing about ALS, with my diaphragm no longer working, I'll never have hiccups again! Yea! :D
  4. Syekick

    Hospital gowns, kilts, and snuggies

    As a 6'4" guy finding a covering that goes to mid calf or lower for use while sitting in a wheelchair without pants has been near impossible. I tried several hospital gowns from many companies. Most came down to just cover the knee. Buck and Buck, Silverton, and many more. Also tried the...
  5. Syekick

    Pulmonlogist Appointment Done

    I saw my pulmonologist today, for the second time, now six months later. My diaphragm hasn't worked in over a year so I have to rely on what's left of the other chest muscles. The great news is that I'm still holding steady with a FVC of 73. Who knows what the future holds but that means I...
  6. Syekick

    New Thread in Tips/Gadgets

    I put a long post in forum of TIPS etc of things I find very useful. Perhaps you will find something useful in it.
  7. Syekick

    Devices that help me

    Below is a list of things that make my life better. Some I no longer use but were well worth it for a time. In no particular order, just as they occur to me as I wrote this. I've had ALS for nearly 3 years but wasn't diagnosed till 9 months ago. I am fortunate to keep getting my medical...
    • Syekick
    • Thread
    • als arm back battery bipap chair cold cough assist diagnosed early eating eyes falling fatigue fell finger foot fvc hope hours insurance life lift love manual mattress medical mobility money muscle muscle weakness muscles phlegm power power wheelchair pwc reading running shower support transfers travel trip van voice weakness wheelchair
    • Replies: 21
    • Forum: Tips, tricks, and gadgets
  8. Syekick

    Baen Books - Free ebooks for the disabled

    Baen Books, a publisher of science fiction, will provide its books to fans who are blind, paralysed, or dyslexic, or are amputees, in electronic form free of charge, effective immediately. My account at Baen has been approved and I have tons of books to read now, all for free. I'm rereading...
  9. Syekick

    Ads

    I see the ALS forum gave us ads on the start of each thread for Christmas.... :sad:
  10. Syekick

    Gatlinburg

    Off to Gatlinburg, TN to try a few days vacation. I can still transfer but that's about it. Arms OK and hands iffy. I have a PWC and got a used wheelchair van for travel. So, out and about in cool weather. The wife will keep me wrapped up well when we go through the shops in Gatlinburg...
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