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  1. M

    co2 reading from a blood draw

    I had a regular blood draw, but they took several vials, and a co2 result showed up in the results. Is this an accurate number? People here talk about a blood gas test to get an accurate co2 reading, but I don't know what that is. Is it a special blood test or just a regular blood draw that is...
  2. M

    balloon changing

    can you get a dangler with a balloon? how difficult is it to change the balloon the first time? We've watched some YouTube videos, but it is still daunting to think about. I know everyone does it.... But still. :-) how often do you change it? Once we change it the first time or two, we won't...
  3. M

    new neck brace that looks like it will work

    a neck support that looks like it will work! it was developed and tested under the name sheffield snood, and it is being marketed under the name headup collar. here is some info on it...
  4. M

    turning in a hospital bed

    is there any way a pals can sleep on their side in a hospital bed and have their cals turn them onto their other side two or three times per night?
  5. M

    A good friend

    my friend, kenschatz, passed away two weeks ago. He didn't post often here, but he did post occasionally. He was a good and generous man. I will miss him.
  6. M

    neck brace

    losing neck strength and tried a soft neck brace. My head still fell forward and the brace felt like it was choking me. What do you guys do?
  7. M

    Gleason act

    I know someone who will testify Thursday in front of the House Energy and Commerce Committee about the Steve Gleason Enduring Voices Act. This act would end the sunset clause on the Gleason Act from 2015 and ensure that speech generating devices remain firmly in the category of "frequently...
  8. M

    biomarker in als

    https://www.healthcanal.com/brain-nerves/als/235363-biomarker-als-disease-progression-identified.html
  9. M

    glycerin suppository

    I used a glycerin suppository today. After a hour, I used a saline enema. The glycerin suppository hadn't melted at all. Should I try them again and wait longer than an hour. Or are they just not going to work for me. anyone else had this problem?
  10. M

    RCH4 Drug stopped by Dr. Bedlack

    Moderator's note: This topic was explored some months ago in this thread. dr bedlack designated eric valor as the lead investigator for the rch4 review on behalf of alsuntangled (alsu). a review for alsu should be conducted in the following manner, according to the alsu website (2 minutes into...
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