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  • Users: mich5
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  1. M

    Shifting Sands...

    you are a FANTASTIC caregiver and a kind and loving husband. My heart is with you both.
  2. M

    saw your post about wheelchairs, and just wondering how exactly that the F3 is tippy. Your...

    saw your post about wheelchairs, and just wondering how exactly that the F3 is tippy. Your comment made me concerned about getting one, but I like the permobil brand. I don't really want to switch to a quantum. I am eligible for a new chair from Medicare. Thanks!
  3. M

    Still here thanks to RCH4

    my neuro ordered the blood test. I didn't start Rch4 until about three years ago. I was just noting that no side effects have shown up on my blood tests.
  4. M

    Still here thanks to RCH4

    we did a full panel the first time I saw him and just continued to do them. I was too new to the disease to ask why and then I just liked having all the info so I never questioned it.
  5. M

    Still here thanks to RCH4

    I have had full panel blood draws every three months since I was diagnosed with no significant change in the numbers. I'm not sure how to proceed from here, but I agree the negative comments stated as fact have to stop. I have no problem with anyone who has talked with the group making...
  6. M

    Still here thanks to RCH4

    3+ years on Rch4 and still doing well. Progression is slow.
  7. M

    portrait

    I always look forward to your paintings. Thank you for posting them.
  8. M

    co2 reading from a blood draw

    I had a regular blood draw, but they took several vials, and a co2 result showed up in the results. Is this an accurate number? People here talk about a blood gas test to get an accurate co2 reading, but I don't know what that is. Is it a special blood test or just a regular blood draw that is...
  9. M

    balloon changing

    can you get a dangler with a balloon? how difficult is it to change the balloon the first time? We've watched some YouTube videos, but it is still daunting to think about. I know everyone does it.... But still. :-) how often do you change it? Once we change it the first time or two, we won't...
  10. M

    new neck brace that looks like it will work

    here is an abstract assessment https://www.ncbi.nlm.nih.gov/pubmed/26673978
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